Caregiver Online Community

We com­mis­sioned our own piece of online com­mu­nity research, to keep our­selves on our toes, to keep up-to-date with the lat­est online plat­forms and to assess their value and rel­e­vance in pharma mar­ket research.

For more infor­ma­tion on the method or a sum­mary report of find­ings from this study, please con­tact or


  • A 2-week online com­mu­nity com­prised of 20 care­givers of patients with Alzheimer’s Dis­ease in the US and UK
  • Daily diaries
  • Forums
  • Polls
  • Image and video upload tasks
  • Dis­cus­sion topics




With the free­dom to con­tribute in their own time and at their own pace, com­bined with the anonymity afforded by the plat­form, com­mu­nity mem­bers forged mean­ing­ful rela­tion­ships with each other and the research team.

The diary and forum func­tions allowed care­givers to express their inner­most thoughts and atti­tudes towards AD treat­ments, their frus­tra­tions with the lack of sup­port avail­able and a whole host of other issues.

This is clearly a reward­ing expe­ri­ence for par­tic­i­pants as well as researchers — here’s a few of the clos­ing thoughts from our caregivers…

A safe, infor­ma­tive atmos­phere where I felt com­fort­able shar­ing my thoughts and opinions

This was a very worth­while expe­ri­ence and I appre­ci­ate being able to take a sneak peek into the lives of other caregivers.

I appre­ci­ate all the ideas you’ve all shared with me and each other… feel I’ve learned quite a bit!