Our online patient and caregiver communities are designed to elicit emotions and story-tell experiences…
We recently commissioned our own piece of online community research, to keep ourselves on our toes, to keep up-to-date with the latest online platforms and to assess their value and relevance in pharma market research.
- A 2-week online community comprised of 20 caregivers of patients with Alzheimer’s Disease in the US and UK
- Daily diaries
- Image and video upload tasks
- Discussion topics
With the freedom to contribute in their own time and at their own pace, combined with the anonymity afforded by the platform, community members forged meaningful relationships with each other and the research team.
The diary and forum functions allowed caregivers to express their innermost thoughts and attitudes towards AD treatments, their frustrations with the lack of support available and a whole host of other issues.
This is clearly a rewarding experience for participants as well as researchers — here’s a few of the closing thoughts from our caregivers…
A safe, informative atmosphere where I felt comfortable sharing my thoughts and opinions
This was a very worthwhile experience and I appreciate being able to take a sneak peek into the lives of other caregivers.
I appreciate all the ideas you’ve all shared with me and each other… feel I’ve learned quite a bit!
A more detailed summary report of findings as well as recommendations for when and how to implement this kind of research is coming soon…